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FA

At PTC Therapeutics, we've spent the past decade working closely with the Friedreich's Ataxia (FA) community. This helps us to better understand the challenges of living with or caring for a loved one with FA, especially in younger, more vulnerable patients. Your experiences matter. By sharing your insights, you can help us shape the future of FA care.

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Join the conversation shaping the future of FA care. Sign up for updates from PTC Therapeutics and stay informed about the latest advancements in FA management.

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Not actual patients.

Share your experience

Please take a moment to share your insights and help us deepen our understanding of what young people living with FA and their families face.

1Which of the following best describes you?

2If you or someone you love has been diagnosed with FA, who first noticed FA symptoms?

3Is the person diagnosed with FA currently taking a prescription treatment for FA?

4What is the biggest challenge you or your loved one face when starting a prescription treatment after a FA diagnosis?

5What aspects of FA do you feel are overlooked or need more awareness?

6What are the biggest difficulties you or your loved one face in managing FA symptoms each day? (Select up to two.)